Rare Skeletal and Metabolic Bone Disease

June 23 is XLH Awareness Day and Osteoporosis Canada is raising awareness of rare skeletal and metabolic bone disease so that more Canadians can optimize their bone + muscle health.

XLH is described as individuals having low levels of the mineral phosphorus (sometimes referred to as “phosphate”) in the blood due to abnormal processing by the kidneys. When there is not enough phosphorus to reach the bones and teeth for absorption, bones can become deformed, soft and easy to fracture. Generally, XLH is diagnosed in childhood; however, those with milder symptoms may not be diagnosed until adulthood.

OC Replay

Watch the OC Replay webinar with Dr. Angela Cheung to learn more about the causes and symptoms of Rare Skeletal and Metabolic Bone Disease including XLH.

Webinar

There are all types of urgent situations that you need to be ready for including climate and environmental disasters like extreme heat and cold, wildfires and severe weather, flooding, power failures, health emergencies and fire. Emergencies can occur suddenly and without any advance warning and if you have a chronic illness like osteoporosis and are limited in mobility due to fractures or are at risk of fracture you need to know what you need to do to protect yourself, prevent injury and stay safe.

Join us on July 9th with Sarah Rydahl, Registered Physiotherapist for Emergency Preparedness to learn about how to plan, prepare and protect yourself, your household and community in the event of an emergency.

NEW: OC Blog

Over the past two years, Canada has undergone a significant and coordinated transition in osteoporosis care: the shift to biosimilar denosumab. At Osteoporosis Canada, we have closely followed this evolution, recognizing both its challenges and its potential to improve access to treatment for Canadians living with osteoporosis.

To learn more read the latest OC Blog: Biosimilar for Denosumab.

Seeking Research Study Participants

Volunteers are needed for a research project about barriers and facilitators that they had experience after a hip fracture. Your participation will contribute valuable insights that can help improve the quality, accessibility, and effectiveness of rehabilitation services for older adults recovering from hip fractures.

You may be eligible if you are 65 years or older, have had hip fracture surgery within the last year across Canada, have access to the internet, and can provide consent yourself.

If you are interested and agree to participate, you would be asked to:

• Complete an online survey (20-30 minutes) about the barriers and facilitators.

• Optionally, take part in a 20–30-minute audio-recorded Zoom interview to talk more about your rehabilitation experiences.

Participation in this study is completely voluntary, and withdrawal doesn’t affect your access to care or treatment.